George's Organization Plan
1) 3 ring binder for medical test, with a divider for each type of test.
2) 3 ring binder of medical practitioners, with a divider for each.
3) Directory on computer, named "medical", set up to contain all medical issues.
4) A "medical \ issues \ specificIssue" directory on the computer set up for each medical disorder (e.g. "medical \ issues \ CFS \ "). Notes were kept in MS Word and MS Excel files. For example, a CDC new report on CFS may sit at "medical \ issues \ CFS \ cdc_CFS_report.Doc".
5) A "medical \ MyCase \ " directory set up to contain information about George's specific case.
6) A "medical \ MyCase \ dailyLog.xls" journal (MS Excel spreadsheet file) set up to Document what happened each day in terms of symptoms, tests, vitamins/meds, exposures to allergens (chemicals, dust), exposure to viruses (e.g. meeting many people), sleep, FMS pain levels, and fatigue levels. Each day was placed on 1 to 10 rows on the spreadsheet.
7) A "medical \ correspondents \ " directory set up to contain 1 MS Word file for each non-MD person that George corresponded with, where the file name was their email address. Emails in both directions were pasted to the top of the file, with a "---------" between each entry. This folder contained over 150 contacts who experienced similar CFS/FMS symptoms. George met many people in chat rooms and list servers.
8) A similar folder at "medical \ Docs \ " was set up to contained 1 MS Word file for each Doc that George corresponded with. This included over 40 contacts.
9) A folder at "medical \ drug stores \ " set up to contain 1 MS Word file for each drug store/vitamin supply shop; where each file contained notes about the facility, their products, prices, and email correspondents. www.VitaminShoppe.com was most helpful.
10) A folder at "medical \ test labs \ " set up to contain 1 MS Word file for each medical test lab; where each file contained notes about the lab, their tests, and email correspondents.
11) A folder at "medical \ resources \ " set up to contain 1 MS Word file for each medical resource; where each file contained notes about the resource and email correspondents. Medscape.com (which provides access to medline) was most helpful.
12) A folder at "medical \ My Summary \ " set up to contain 1 MS Word file for summaries of George's case, as they changed with time. These were emailed/posted to interested parties.
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